Two Days
It’s been a relatively quiet 2 days. Let’s start with Friday. We got the cough to start calming down the fever back under control. She...
top of page
Tay-Sachs Warrior
Olly Belle
Tay-Sachs Warrior
Olly Belle Chapman was born on April 22, 2018 and passed peacefully in her home on March 26th, 2020 surrounded by her loving family. She enjoyed music, giggling, playing with her sister, and watching the trees blow in the wind. Despite her youth, Olly Belle possessed perhaps the sassiest eye roll on the planet and had a gentle smirk full of more personality than someone ten times her age.
Though the time she spent on this earth was brief, the light and warmth she provided will shine through all who met her for as long as they live. We thank God for his perfect peace, timing, grace, comfort, wisdom, and also for sharing his daughter Olly Belle (child of God, princess of peace, and Tay-Sachs Warrior) with us.
Olly was survived by her incredibly devoted parents Lora and Nate, her amazing sister Mara Joy, grandparents Isaac and Cheri Chapman, Paul and Lisa Eischens, great grandpa Bill Engel, great grandma Jan Isaak, aunts and uncles Trent, Mandi, Keia, Nick and Kristine and many other extended family members and friends.
A private family service will be held. Celebration of Life will take place in June. In lieu of flowers please consider donating to Olly’s Go Fund Me to help with final expenses and college fund for big sister Mara Joy.
Home: Welcome
Search
Answers
February 6, 2020 So we have a diagnosis- really bad case of adenovirus. Will be here a few more days until Olly can tell us she's ready...
What A Day
February 5, 2020 Hey everyone, What was already planned to be a busy day today got even busier. Last night right after the update Olly...
Hello Robots
Well apparently we missed the robots- So we are visiting the hotel with robots now! Beep beep (robots say “hi”). Olly was Admitted to the...
Look We Are On TV!!!
Here is the CTN Journal story that we talked about in the last update.
Well Hello There!
February 2, 2020 We don’t know about you, but January was a tough month. It was full of appointments, illness, and the unexpected– seemed...
My Fault, I Should Have Known Better
December 17, 2019 I should have known better. Ask anyone that knows me there are certain things you don’t do: * You don’t talk about a...
Good Week
December 16, 2019 Hi Everyone, Been pretty quiet and busy week all at once. Since the last post we have only had 2 appointments, granted...
It's Been Awhile
December 7, 2019 It’s been a while since the last update and that is certainly not for a lack of activity. Let’s see if we can get you...
Busy Week
November 13, 2019 It was a busy week last week, with another couple more on tap. Last start at the beginning, on last Tuesday Olly had...
Two Weeks
November 2, 2019 Hey Everyone, It has been two weeks since our stay at the hotel with robots so we thought maybe an update was warranted....
Surprise
October 19, 2019 Today was magical! We started the day meeting Olly’s feeding goals, pooping like a champ, minimal wound discharge or...
Two Buttons
October 18, 2019 Big things today. Olly now has two buttons. Her g-tube surgery was a success and very quick. From they time the wheeled...
Good Day
October 17, 2019 Today was a good day for Olly at the hotel with robots (they were quite chatty today with all their beeping). Olly's nj...
Progess?
October 16, 2019 Olly update for today... she's been doing a glucose challenge all day (no food or drink since 8am-11pm, pokes for sugar...
Day 6
October 15, 2019 Olly is doing alright today, blood sugars are regulating on continuous tube feeds. Took her off them at 9am for another...
Extended Stay
October 14, 2019 Good Evening, Another long day. Lots of information that we are still trying to sort through. We met with PT,...
Adding our to Stay and Adventure
October 13, 2019 Olly is slowly coming back day by day!! Likely staying here longer than planned.... Waiting on results from blood work...
Hi Friends, It's Olly Belle!
October 12, 2019 Hi friends, its Olly Belle! I am not much for words these days, but I sure know how to dish out the smirks and smiles :)...
And So It Begins...
October 11, 2019 Olly decided she needed to test our preparedness plan for going to the ER last night. It turns out it could use a little...
Home: Blog2
Home: Subscribe
Home: Contact
bottom of page